Excited to share some good news items…. since my last post

Hey everyone,  I’m quite excited with some recent news.  Since my last post I have been taking the new anti nausea pills Dr Ho prescribed and they have helped a great deal…. however I’m still tired and drained all the time, it’s just part of the process.

Anyway I had CT Scan done on May 26th to see how effective the treatments have been for me. I had appointment on Friday, June 2 with Dr. Ho and we reviewed the results of my CT Scan.  I’m happy to share with you the following:

–   No sign of Tumor/cancer on the brain… completely gone.

–   There has been a dramatic decrease in cancer in lungs and lymph nodes

–    Signs showing blood clots have also decreased.
Pretty exciting right!!!  💃🏼💃🏼💃🏼💃🏼💃🏼💃🏼💃🏼💃🏼 ( this is me doing my happy dance).   At least I know that all this that I’m going through is for a good reason.   I do have one thing that I am having a struggle with.  I’m losing my voice and so am trying to talk as little as possible.  This is a very difficult thing as I like talking.  The doctor doesn’t think it is related to the treatments and do has referred me to a throat specialist to further do testing on my throat.  That appointment is at the end of June.   In the meantime I’ve been doing some reading and it is possible that it could be a side affect of the chemo.  So I will just wait it out and see what the specialist thinks. 

I have another Chemotherapy treatment tomorrow, and then another scheduled for end of June ( which is my last scheduled treatment ).  The doctor had wondered if we should continue with a couple more treatments since the treatments obviously are showing success.     I have a wedding second week of August in Kamloops.  My nephew is getting married.  I explained to the doctor that it would be nice to take a break and that might give me some time to feel better by the wedding. Doctor totally agreed so now we just need to determine when I’ll start up treatments again. 

I wish you all a happy and healthy week ahead…. may the sun shine upon us all and brighten our spirits.  Love to all.  

Thank you to everyone for your continued love, support, prayers, good and positive thoughts……. keep it coming – it is continuing to help me to win this battle.   

😍😘💋😍😘💋

Life goes on Time moves forward…. things becoming a routine, new routines.

Since my last post a lot of happened and yet very little has happened….im going to summarize as best as I can… for the past several weeks (4-5) and although I’ve had some feel good days, overall I’ve had 24/7 nausea which has limited my activities.

I did  manage to have some lunch dates, dinner dates, visits at someone’s house and they were delightful.

April 12th doctor appointment with Dr. Lefresne.  Reviewed medications and changed some around.   Dr. Lefresne will do report for my chemo doctor and make recommendations to wait until Chemotherapy is complete and will follow Dr. Ho’s lead for another CT Scan.  Dr. Ho had mentioned probably mid way through Chemotherapy that he will request a scan be done.

In the meantime, regular contact with Fair Pharmacare……around April 10th I received a letter from Fair Pharmacare still requesting more information in order to complete my application, and unable to proceed further until provided the information. One of the things they wanted was my notice of tax assessment, however they already had this as well as they have the ability to access the CRA site to get the information. Also wanted a copy of letter from Employment Insurance showing start date of EI and how many elegible weeks……. Ummmmm, did they forget I retired and am on a pension and don’t get E.I.     So, I called them and the person I spoke to said no no you don’t need to do all that, we have it here and your case will be reviewed as per my original request.  Ok ……… but I did do the “if I don’t  get some answers in the next week, I’ll just have to contact my MLA.  Getting fed up.  

  1. Received a letter dated April 14th advising the review was complete.  My deductible was to be $2500, and the family maximum deductible was $3350.  TADA,  finally done.  I thought the deductible was going to be less than that but it is what it is…… Well, actually not always – I received another letter dated April 28th confirming my Fair Pharmacare assistance.  The deductible is $1100 and family maximum is $1475…. that’s more like what I had thought the deductible might be.   Anyway, all done at this point.  The next item I now need to deal with is requesting the amount I paid over the $1100 and $1475, as a result of decision taking so long.  We figure I have paid between $2200 and $2500.  They had advised that if there was an over payment I will get the money back, however here’s the catch – any overpayments this year will be reimbursed January of next year (grrrrrrr). Anyway I’m just so glad it is done and YES when I went in to get my prescription I paid $0 (zero)… what a super feeling and burden taken off. 

I’ve had 2 more chemo sessions since last update.  Chemo has been definitely hard….. constant nausea is frustrating but I’m hoping it means it is doing something good to the body.  But my daily routine has been a struggle for sure.  I’m never hungry because I have nausea and so when I have brief periods of time when I feel ok I’m trying to make sure I eat.  My food desires have become very limited too.  Zero tolerance for spice, so pretty bland and basic food for me.  

When I had chemo in April I mentioned about not feeling good most of the time.  The doctor covering Dr. Ho didn’t want to change anything, preferred I wait til next time I see Dr. Ho.  After about 10 days I called the nurses at the oncology centre because I was not eating, throwing up bile, and just not feeling well.  They changed up medication slightly as well as prescribed a new pill to take on the next chemo date (May 15). 

On May 12th I had my pre doctor visit before chemo treatment.  Explained still wasn’t feeling great and had nausea 24/7.  Dr. Ho decided to prescribe a strong anti nausea pill.  Reading through all his notes and Dr Lefresne’s notes Dr. Ho thinks that when I changed medications in April when I saw Dr Lefresne is when I started not feeling good and having nausea.  New pill is very expensive (thank goodness I have 100% coverage now 😀). 

So now I will just continue to take one day at a time, and hope for the best.  Right now I’ve also been hesitant trying to make any plans to see people, I’m really concentrating on the get well and get lots of rest part. 

I apologize to you (and myself) that I hadn’t kept updating as I was going along, but I guess when feeling crappy the energy level and concentration level drops.

I continue to thank you all for following along with me and for all your positive thoughts, vibes, prayers, healing thoughts and whatever else you can do on my behalf….and to all contributors through my blog I can’t thank you enough- so much burden was lifted especially with medications.

Some random pics:


Love to all 😍💋❤️

Steady busy til end of the month of March, welcome April …

We seemed to have a day in day out routine of going back and forth from old house to new house.  On Monday, we met Ray and Jo at old house as they were buying/picking up furniture. Then they came out to the new house and brought some stuff out for us and also got a chance to see the new place.

The next few days were really rough for me….. I had a lot of nauseau so was absolutely useless at all… I wasn’t able to help with any moving… I did go back and forth with Tiffany and Luca to the old house but I just sat with Luca while Tiffany organized more things to move.  At this point we just had little things to move, but we wanted to purge and not just move things…

I also want to acknowledge my cousin Conner Macdonald, who is just 15 years old and created this for me……Such a talented young man… here is his accomplishment:

IMG_0196

(Written by Conner Macdonald):

” We all know cancer sucks, some people have different ways of dealing with it. In Maureen Brady’s case she doesn’t let it take over and let it change her, it takes a strong woman to fight the battle she’s fighting with a smile on her face. Cheers to many more years of laughter. She’s her own superhero. I love you.”

Thankyou Conner – I love you too 😍

 

Next up on things to do:  Organized cleaners to clean old house on Monday, March 27th.  That went fairly well, just a couple of bumps in the road… why not, nothing should go smoothly at this point 😀. I let cleaners in and then left so they could do the work.  While there, the owners showed up at house to do some work, ended up hiring cleaners husband who is a handyman… when I returned to the house several hours later they were just finishing up.  I needed to get home to rest do left them there to finish up.

In the meantime there were a  couple of items at the house that we still needed to pick up….but, the owners had the handyman taking some stuff to the dump. Our items were included…. someone should have asked us about this but neglected to which was frustrating as we had sold these items to people.  Long story short we managed to get one of the items back but the second item went to dump. None of this stuff helps when you are feeling like crap/shit…

March 29th, 2017: my grandson Luca turned 9 months old today so here are a couple of pictures to brighten the day:

 

IMG_0197

Thursday, March 30th, 2017: met at old house….. Met with Danny, property manager, to do final inspection and hand over the keys…. YaY, we can just be in one home now… good feeling!  Maybe now we might just get a chance to unpack the sea of boxes that we are living in.  It is very difficult as day to day life happens.. Jake goes to work Monday to Friday; Tiffany and Luca have daily routines; and I’m, well, im just tired and unwell most of the time.  We manage to do a bit each day but when you have at least 50 – 70 boxes to open it becomes overwhelming. Someday soon hopefully……. 😀😀🏡🏡.

 

During this time  I have continued to receive gifts and cards, notes, hearts with lovely messages, and of course the continued outpouring of donations on the GoFundMe page.  I am daily reminded what wonderful people I have surrounding me in my life – what a blessing 😘.

Here is one pic with one of the hats on… not a great picture as I wasn’t feeling very good.  More pics to follow another day…. I received the wonderful selection from my good friend Lorrie… thank you Lorrie for your thoughtfulness and kindness… 😍😘

IMG_0199.JPG

 

Friday, March 31st, 2017:    Appointment at Richmond General Hospital with Dr. Ho to do check in from previous Chemotherapy treatment.  After the appointment I had another appointment with Shannon, one of the nurses at the cancer care clinic.  She put in a “picc” line.   A picc line is a catheter that is inserted into a vein.  The tip of the catheter is positioned in a large vein that carries blood into the heart.  This will be the source of where the Chemotherapy drugs will be given every 3 weeks.  This catheter will remain this way up to the end of Chemotherapy treatment.  In other words, my new friend will be a part of my arm until around end of June.  Here is a picture of what it looks like

IMG_0198

The dressing will need to be changed weekly so I made arrangements with Fraser Health to have a nurse come out to the house weekly to do this.  The first appointment we went into the office to change the dressing and go over other things that they can assist with.  This was on Saturday, April 1st.

Sunday, April 2nd: Off to Richmond Hospital labratory to get standard blood work that needs to be done prior to Chemotherapy day.

 

Monday, April 3rd:  Chemotherapy today.  Tiffany dropped me off at 9am…. pretty routine, and with having the picc line in it is much quicker to start the IV for the drugs.  No muss, no fuss.  I just relaxed the majority of the time, even got a sleep in…. it was very busy with patients but I just closed my eyes and rested. Tiffany and Luca picked me up around 1:30 pm and home we went.  I spent the rest of the day and most of Tuesday in bed and slept for most of it.  Well, they say rest as much as I can, and this is the first time I can say I felt like I actually did rest.  It is still very hard for me to realize I need to rest, especially when our house still needs some organizing. Definitely struggling with it, wanting to help Tiffany but I don’t think I’m of much help….

Wednesday, April 5th, 2017:    Appointment at VGH, Hematology Centre, Thrombosis Program.  This was follow up from when I was in the hospital in February.  Saw Dr. Ambler to review current situation etc.  Everything ok at this point and recommendation is to continue with blood thinner injections at least for 4 more months.  Will do another follow up at the end of July 2017.

After this appointment off we went to see my regular GP, Dr. Wang.  There were some forms that needed completed regarding palliative care.  The Fraser Health Nurse sent these to my doctor to have her sign off and have me sign as well.

Still dealing with Fair Pharmacare and just don’t know when it will be settled… I will call again in the next couple of days and check the status of my request to review 2017 Income.   If this isn’t settled real soon I’ll need to see who can possibly expedite this as I have paid a fair amount of money and I’m almost positive I’ve possibly reached my deductible but need Fair Pharmacare to confirm amount.  I was reassured it would be backdated to January of this year.  And if I do pay over my deductible I will get the money back…. oh but here’s the catch: I will get the funds back but not until next year!!!  Really, I don’t get that but… no control = no choice but to wait….

Ok…. enough of that.

I Just would like to acknowledge the wonderful staff at CLBC.  As you know I have been receiving in the mail some hearts with lovely, encouraging messages from people.  CLBC was doing a fundraiser along with these hearts and so the other day I received a large money order as a result of collecting donations through the “big heart” fundraiser…. Needless to say I was absolutely overwhelmed… YES, I cried like a baby… I cannot thank you enough for what everyone has and is doing for me.  This just removes some burdens from me and makes me feel warm and fuzzy and I have each and everyone of you to thank for that.

I appreciate all the encouragement, Love, support, prayers, good vibes, positive thoughts… you are all truly wonderful people…. until next time 😍😘😘😘😘❤️❤️❤️❤️😍😍😍LOVE to all

 

 

 

Busy busy week..March 13th to March 19th, 2017…. Chemotherapy week plus move week…

Monday, March 13th, 2017:  Chemo treatment day, 9:15 am at RGH Cancer Care Clinic…. This morning I felt really really sick, must have been nerves.   I didn’t take any of my medications initially as I wasn’t sure if I was supposed to.  Just before we left the house I took the medications cause I was not feeling well.  By the time we got to the hospital I told the nurse I didn’t feel good.   She got me all set up for chemo treatment except she wasn’t able to find a vein to get a needle into… there is one nurse there that does this when they have trouble – done.

Okay, I’m there for 4 1/2 hours.  I was a bit restless, I guess since it was my first time and didn’t know anything.  I was up and down to the washroom. Next time I go for treatment, I’ve been instructed to take the chair closest to the washroom ( yes I was up to the washroom 7 times 😜).  Nurse Brigette said I’m first there for next treatment so we will set me up in the chair by the washroom and also by a door that opens ( cause yes I got really hot a couple of times!). I was there so long they do serve lunch which is great because I seem hungry every 2 or so hours. Tiffany and Luca came and picked me up at 2pm. Home we go to do more purging and packing

Tuesday and Wednesday I think we’re just continuation of purging and packing since MOVE Day was fast approaching.    However I did have another conversation with someone at Fair Pharmacare this week.  I really wish I has gotten her name…. she was horrible and quite frankly rude.  I explained my situation as I have been over the past few weeks.  It was always the same answer – once taxes are filed and the “notice of assessments are available” then I can request the “review and request they use 2017 income”. Completely different answer today. Answer I received was ” oh you are too late, there is nothing we can do for you”… so I go through my speech and she just didn’t care. I then asked if there was a manager or supervisor I can speak with and she simply said NO….After a couple of choice words I hung up. I decided I would wait a day and try again.   I think I was madder of the fact that I didn’t get her name 😀.

Thursday, March 16th:  I made a doctors appointment with my regular family doctor.  I’ve had a mark on my right cheek since December.  The doctor had given me some cream to treat it but it is still flaring up and gets warm to the touch.  Dr. Wang is wondering if it’s related to the cancer and so has referred me to a specialist, a plastic surgeon since it is on my face.  Also my right ear has been feeling like it is plugged all the time… ear looks perfect… should hear from specialist within a week to 10 days.  This little picture is a cute bracelet I picked up through Avon.  I used to have this on my work email signature.

 

IMG_0195

 

 

Friday, March 17th… St. Patrick’s Day….Move day:

 

IMG_0194

Here we go – move day”…. Both Debbie and Patricia came over with their vans to load up.  Jake’s dad John also came and brought a trailer to load a lot of the smaller stuff.  Movers arrive at 10am… this was a bit of a hard day as I was feeling quite nauseous and so unhelpful…. 😕.   At around noon Debbie suggested I go to her house in Ladner and try to rest before movers made their way to Tsawwassen.  We stayed there til about 2:30pm, and I think I fell asleep before my head hit the pillow.

My cousin Maria joined us in Tsawwassen to help do some unloading.  Thank you to John, Debbie, Patricia, and Maria for your help. What a long long long day… movers left our house at 6pm.

Saturday and Sunday consisted of going back and forth to the old house, getting more of the smaller items. There is light at the end of the tunnel, I can see it, we are almost there.  Next to sort out cleaning of the old house and giving keys back at the end of the month.  Also will be requesting my security deposit back as the house is in great shape, just the usual wear and tear.

 

At at this time I would like to express my love and gratitude to all of you who have made contributions to the GoFundMe💋💋😘😍💓💖❤️💙.

I am forever grateful to each and every one of you…. there are so many things to say but please know how much each and everyone of you have filled my heart with tears of happiness and joy…. thank you for just being a part of my life….

Of course this all reminds me of a song from my favourite artist ROD STEWART…. “Have I told you lately that I love you”…. please if you get a chance go on YouTube and have a listen. I listen to it every night – it is such a beautiful song.

Lyrics and I dedicate this to ALL of you 😍😘💋:

Have I told you lately that I love You?

Have I told you there’s no one else above you?

Fill my heart with gladness, take away all my sadness

Ease my troubles, that’s what you do.

 

For the morning sun and all it’s glory

Meets the day with hope and comfort too

You fill my life with laughter, somehow you make it better

Ease my troubles that’s what you do.

 

There’s a love less defined

And it’s yours and it’s mine

Like the sun

And at the end of the day

We should give thanks and pray

To the one, to the one

 

Have I told you lately that I love you?

Have I told you there’s no one else above you?

Fill my heart with gladness, take away all my sadness

Ease my troubles, that’s what you do.

 

Until the next update …… 💋😘😍

 

 

 

Time flies so fast…. been 2 weeks already since I’ve updated. 😳

Time just moves on quickly and before you notice many things happen.  In our constant chaotic life right now it doesn’t even feel real some days…. anyway spent a couple of days continuing to purge and pack.

Sunday, March 5th:  Tiffany and Jake loaded up the truck and took stuff over to the new place… my cousin Patricia, in her crazy busy life, brought her van over and took things from my bedroom over to the new house…. she came all by herself to do this, meanwhile she had 4 – 6 people at home, I did tell her to bring some muscle with her, but she is a trooper…. she did it all by herself.  Patricia, I am very grateful for it…picture taken finally.

IMG_0193

Monday, purge and pack.  Throughout all this Debbie Jackson has continued to come over and help us pack and get rid of stuff, thank you Debbie 😘..

Tuesday, March 7th:  Had a moving company come over to the house to do a estimate of costs for our move.

Afternoon 1:30pm appointment at a Richmond Hospital, Cancer Care Clinic: Chemotherapy Orientation with the nurse (Brigette).  Tiffany and Jaime both attended this information session with me, thanks Ladies.  My Chemotherapy information:

I will have 6 or more Chemotherapy sessions.  Each session I will be at the cancer care clinic for 4 1/2 to 5 hours.  Chemo will be once every 3 weeks.  The day before the chemo I need to go to RGH Lab to get blood work done. In addition I will also see the doctor once every 3 weeks. So here is what my next 2 month schedule looks like:

Session 1:

1) blood tests (after orientation)

2) Chemo –  Monday, March 13th 9:30am ( 4-5 hours)

3) Dr. Ho – appointment March 31st at 8:50am

Session 2

1) Sunday, April 2nd – Richmond Hospital – bloodwork

2) Monday, April 3rd – Chemo at 9:00am

3)  Doctor appointment at 9:55am – Dr. Ho on vacay do will see Dr. Yuen that day.

Session 3

1) Sunday, April 23rd – Bloodwork

2) Monday, April 24th at 9am  – Chemo session

3) doctor appointment- still needs to be set up.

Brigette gave me some pamphlets and explained all the medications related to “after treatment”…

Thursday, March 9th:  My brother Mike in town for meetings so came over after and spent the night with us.  Had another nice evening, good food, good company.

Also picked up prescriptions for the “after chemo”, as well as I needed another 10 days of injections..

This week I also did my 2016 Income Tax. In order to request a review with Fair Pharmacare I had to have taxes filed and up to date. I was slightly dreading doing them as I thought I may need to pay…. I was right.  $951 needs to be paid to income tax. Ok, will do…. In the meantime I also received a letter from my extended health advising::::::::

“Our records indicate your Pharmacare purchases have reached or exceeded $500.00 ( ah, no kidding).  Your Extended Health Plan requires that you register for BC’s Pharmacare program and notify us.  If you have not done so, please register with Fair Pharmacare as soon as possible to maximize your financial eligibility.   Once your eligible Pharmacare costs reach or exceed $850.00, Pacific Blue Cross will not make payment for these expenses until you advise us you have registered with Fair Pharmacare by completing and returning the attached declaration”

Well, gee let’s just add to the complications!!!!!  Ok call into Pharmacare again to request Income review for 2017.  Now that the 2015 and 2016 Income Taxes have been filed and Notice of Asessments are on file Fair Pharmacare can do a review….. WHOA, SCREECH, HALT  – The person I speak with says. “Sorry you are too late to do all this, there is nothing I can do.  It is closed “… hmm I try to explain what has been explained to me by other staff that work with her and she just wasn’t listening to me.   I asked if there was a manager or supervisor I could speak with, but she actually said NO… unfortunately I didn’t get her name otherwise I would be reporting her as perhaps if she said this to someone else they would in fact give up…… Well Not me.

Ok, in the meantime more prescriptions to be bought ($359)… I’m assuming all this will just deduct from my deductible when they figure out what it should be.  Maybe by the time all is sorted out I will have paid my deductible. And it will just get easier…👍😀.

Ok so in the meantime my dear friend Megan Tardif convinced me that I should allow her to set up a GoFundMe page and she would administer for me. It would be an awesome way for people to help me and my family to take some burdens and pressure off us. Even though it’s a bit embarrassing, I don’t think it actually took too much convincing as I was using what I had in savings as well as charge cards were being used for medications (including using my daughter Tiffanys charge card )….

Saturday, March 11th:  Megan sets up GoFundMe and publishes it on Facebook.  In the meantime my other dear friend Michele Frewin had mentioned awhile ago about this, so was very pleased when she and Megan spoke about it.  Thank you ladies and I love you both ❤️😘😍… ok and I get to meet these two lovely ladies for lunch the next day.

Sunday, March 12th:  Michele picked me up and we met Megan for lunch.  What a wonderful afternoon spent with these two people…..good food, great conversations and lots of laughter… we really do have a good time together, all feels so natural.

Going to publish this now and will do the next week later on today or tonight…. I know I said this before but I know I will this time

Thank you all again for the outpouring of love and support, prayers, well wishes, positive thoughts, positive healing vibes….. do keep them coming please as it is definitely helping me.., Love to all ❤️😘😍💋

IMG_0987

 

February 26th , 2017 to March 3rd, 2017 update…. I really need to be up to date so that I can write daily or every couple of days😍…

 

 

The past several days have been busy with appointments but in order to live my new life style these appointments are necessary.

Currently We live in a house where we are the tenants on the second floor, and as a result of the 3 blood clots, we were required to start seeking rancher style living accommodations…Well, they didn’t demand it but initially were hesitant about releasing  me from hospital…….. 🏡I know right! But hey let’s just add to our chaotic life at the moment 😀.   The good part is that we didn’t have to look far, this new place in Tsawwassen is just exactly what we need.  So, needless to say we are also moving over the month of March and will move to the Tsawwassen Community.  Although we actually like the house we have been living in for 5 years, it no longer suits our needs.  Let me just say we have had incredible landlords and I’m sure they are part of the reason we have stayed there.  We have been 5 years there, and the tenant suite downstairs is now on their 6th tenant…. Sonia and her mom and dad ( we call them Jaz and Nancy) have been great, and Nancy grows garlic in our back yard, and have supplied us with fresh garlic for the past 5 years… oh no..I guess we may need to learn to do our own.

Healthwise I’m doing ok but just completely exhausted… but a good exhaustion as I feel like we are getting all our ducks in a row.

And this little one, Luca, continues to melt my heart daily 💙

 

IMG_0164

 

Sunday, February 26th… Day of rest at home.  Had a nice visit with my niece Jaime and my two great nephews Ethan and Chase.  They wanted to see me because the last time they saw me I was on oxygen and in the hospital.  Jaime had explained to them that I was ill and will probably lose my hair because of radiation to the brain, as well as when I start chemotherapy.  Ethan, during our visit asked me if I was contagious…. what a great question, I was happy to tell him that No I was not contagious, all is good…

 

IMG_0165

Monday, February 27th, 2017:  Today is Snow Day…. how appropriate that today is the first day that I will be starting wearing hats…

 

IMG_0176

 

Tuesday, February 28th, 2017:  Last day of Radiation on brain and lung.  Today I also brought “my cage” home , so myself and my family can destroy it…. At first when the staff mentioned about taking it home my first response was ” Ew, now that’s just gross”… anyway when they told me people actually found it healing and powerful to destroy your own… Good point, okay Yes please I’ll have One cage to go… 😜. I would just like to say how wonderful each and every staff person at Radiotherapy department Section D.  They really truly are wonderful people and made everything easier for me.

I would also like to say a big huge THANK YOU to Debbie Jackson for being my driver over the past several days/ weeks….. Debbie has continued to drive me to my treatments, so that  Tiffany was able to continue with somwhat normal daily routine.  It has been a tremendous help.

Afternoon of Tuesday, February 28th doctors appointment with my regular GP, Dr. Shaoli Wang…. doing follow up on blood pressure medications.   Since I was hospitalized on the 17th of February I have not been taking my 2 pills for blood pressure/ kidney medications.  I have been monitoring my BP and it has been almost perfect…..so, yay, no more of the Amlodipine or the Valsartan/HCTZ.  I will continue to monitor BP on a regular basis.

Wednesday, March 1st, 2017:  Today was my first “treatment free” day and I have 13 days before I get Chemotherapy so as long as I’m feeling ok I will forge ahead and do some things as I can…. here is another look I’m trying out 😍

IMG_0177

Today, March 1st, 2017, I had my 3 key medical supports at our house all together: my daughter Tiffany Randazzo, my niece Jaime Glavin, and my brother Mike who lives in Victoria…… What a great visit…

Also, because I still had a fair amount of hair, and my hair was balding in spots as well as my scalp was itchy and tender, I asked Tiffany and Jaime to cut my hair for me.  Thank you ladies and of course we had to get some pics😀…

 

Today, we were also going to destroy the cage but as it started to get later in the evening I decided that Tiffany, Jake, Luca and I would destroy it…. so instead we took some pictures…the “Cage” is what they put over you and clip you to the table/stretcher during Radiation treatment.  I did quite well….. I can’t imagine if you have a tiny bit claustrophobia this not being an ok experience.  Although I have the 3 by my side, really I have 4, no 5 😀… Jake and Luca are there for Tiffany and myself..

Tonight was also do some packing night.  Tiffany, Jaime, Jake, and Luca went and packed up Luca’s room.. a picture of Tiffany getting prepared 😜

IMG_0189

Over the next few days since no treatments mainly purged and packed… Thank you Debbie for coming over and helping us pack….In the meantime I continued to receive things in the mail.  These next pictures are treasures I received in the mail from a good friend from High School Suzanne Baldock Fluery…. Yikes, this year is our 40 year reunion.  Thank you again Suzanne 💋

 

On Thursday, March 2nd, 2017 I received these beautiful flowers from a couple of secret admirers😍❤️

IMG_0187

Throughout the week I continue to deal with Fair Pharmacare and Revenue Canada.

Regarding the Fair Pharmacare and Revenue Canada advising I did not file 2015 income tax…. how weird is it that this has never ever happened Before and the one year that there seemed to be a “glitch” in the software I downloaded from the Cra website. At this point I just wanted to know what to do to fix it…..file 2015 taxes.  I could not find a program for that year on the website…. but sometimes the power of talking things out  with people can be a saviour… as was in my case.  My friend Wendy dropped by on Friday after work to have a short visit.  I was telling her of the situation, and Wendy told me her sister Judy does taxes and may still have the software from 2015.  She immediately called Judy and yes in fact still had the program…👏….so Wendy took all my paperwork and took over to Judy and my 2015 Income Tax was officially filed…. YAY YAY!! I thank you both Wendy Jackson and Judy Mcanerin. ❤️😍💋

Still need to do my 2016 Taxes and then once done I can request the review through Fair PHarmacare…. I will do the paperwork to file 2016 income tax in the next day or so…. I think I’m doing a bit of avoidance as I have a feeling I’m going to be paying some taxes….

Back to purging, packing, selling some of our household items as well as I’m actually selling my car… so if you happen to know of anyone looking for a good used car 🚗 Here is a bit more detail:  2007 Ford Focus SES;  low km (100,000 km), this car still has a lot of years in it;  One owner (me); No accidents and well maintained. Selling for $7000 ( momma needs medication bwa ha ha, just kidding,needed a bit of humour 😜💋)…. In addition we have many other household things that Tiffany listed on Facebook……we were already making some changes in the house so what perfect timing to do this.  Tiffany and I now call our house with the for sale items the “Brazzo Shop” 😜😍😘…. gotta keep the humour and positivity going, it most definitely makes me feel better.

I’m sure I have missed things along the way. But I’m almost caught up to date…. March 6th to March 11th I’m hoping to actually get that posted either later tonight or by tommorrow 😀

Thank you all for your continued support, prayers, well wishes, positive thought, positive healing vibes…. I can feel the love ❤️😍, so please keep it coming my way…. love to all 😘💋

 

 

 

 

 

 

 

 

 

MY LIFE……going to be a long update😍……….February 17th, 2017 up to Friday, February 24th, 2017

Well, finally trying to capture another week  of my life and it has been anything but normal or slow paced and considering all this I feel pretty darn good.  To note: I will probably post a whole series of pictures together rather than try to insert at certain sections, takes too much time and I’m no expert at doing this kind of stuff…👍

So, here we go :

Hospitalized from Friday, February 17th to Wednesday, February 22nd as a result of having 3 blood clots (1 in left leg, and 1 on each lung) and I required oxygen.

Saturday and Sunday – typical day at hospital…. random medical teams coming by to talk, assess etc.  Rehabilitation to get me up walking, Visitors dropped by as well…not the greatest weekend but I guess could have been worse.

Monday, February 20th, 2017:  Decision to take me off oxygen most of the day as I was doing so well.  Radiation treatment at 1:20 so the hospital arranged transportation via hospital stretcher and was transported through the ” tunnel”……. The person who came to transport me I knew him.  Glen is married to one of Tiffany’s friends mom (small world 😀). Oxygen was given to me during radiation treatment and when Rehabilitation came to have me go for walks….. otherwise I was oxygen free.i did receive a phone call from Richmond Cancer Clinic as I was referred back to Dr. Ho to discuss Chemotherapy treatment. Explained I was in hospital and would call when I was back home.

Tuesday, February 21st, 2017 Treatment 9am…. Today a busier day because decision was made that I was doing so well that I was getting released on Wednesday, February 22nd, 2017.  Today busier than normal as many different professionals ( and sometimes their 4 or 5 interns in tow).  Typical day before being released (nothing is ‘typical’ anymore 😀):

Home care staff to assess and determine home needs such as borrowing medical equipment through Red Cross.  Blood work done.  Physio Rehab came by to take me for walk as well as do a few stairs. All good to go 😀.     Dr. Ambler & team of 4 or 5 from the VGH Thrombosis Program came to see me as I will need to be on blood thinners daily and it will be by giving myself a shot daily.  Dr. Ambler gave me a few samples to take home as they are very expensive shots per month  (approx $1,000.00).

Dr. Dhingra from Critical Care team (& team of 4) came to see me and showed me my CT scan with the blood clots on each lung.

Note that Tiffany was at the hospital a couple of times and every time she left to go somewhere was when any medical teams would come to see me. One thing in common in my conversations with all the medical professional was:

– no stairs to climb at home (or very little) – we live in a house and we live on the top floor and there is a tenant downstairs so we have 14 or 15 stairs to climb) . I explained that we ( well actually Tiffany and Jake) were actively looking for a one level rancher style home – so they were ok to release me home.  They were using words such as reluctant/hesitant as or current accommodations were not ideal…. we reassured them we were in fact looking At my best needs and “we’re on it”… They also assessed my Medical equipment needs – all medical staff making sure I have what I needed in order to feel good at home.

So YAY last night at hospital: Dinner date with my daughter Tiffany and “mom have nice long shower/ bath” to get nice and clean 😀, and pack up all my belonging for Tiffany to take home. Tiffany came to the hospital at dinner time, and we went into the lounge and had our dinner…. ok then clean time, pack up, ready to break free tomorrow.  Oh, and in between the nurse came to teach us to do the shot.  Tonight I noticed that it maybe possible I contracted thrush mouth…so I got some saline solution to use for the night and would speak to Dr. Lefresne.

Discharge plan Wednesday:   Radiation at 10:10 so VGH said they would discharge me, transport me to Radiation at the Cancer Agency and then I wouldn’t need to return to VGH….. HaHaHaHaha, apparently not how discharge works at all…. Went to treatment, then to see Dr. Lefresne.  She explained that the Radiation treatment was targeting the lung but unable to get at the esophagus so was referring me back to Dr Ho at a Richmond Cancer Clinic in order to start Chemotherapy for the esophagus. Dr. Lefresne also confirmed that I have thrush mouth so gave me a prescription for mouthwash. Dr. Lefresne said that legally she could not release me as a patient as I was VGH patient…….. so I needed to go back to VGH to be discharged as well as my chart from the hospital was with me.  As reluctant as I was to go back to VGH in fear of not being released I had realized the nurse that discharged me was to give me a tinzaparin needle for me to do at home.  Back to VGH and then off we go…..Home Sweet Home 🏡

Once home I was a happy girl.  I did call Dr. Ho’s office and set up appointment for Friday, February 24th, 2017 at 10:30am. I was also glad I was home as Tiffany had set up a viewing of a house in Tsawwassen for Thursday and now that I was home I could go view as well.

Thursday, February 23rd,2017:  Radiation at 9am…. then back home to rest as we were going to look at the Rancher house in Tsawwassen later in the afternoon.  Went and looked at the house and it was perfect for my needs.  I took about 80 pictures but will put one photo up for a sneak preview 😀.

Friday, February 24th: Radiation at 9am, found out today that I just have only 2 more radiation treatments and Tuesday, February 28th, 2017 would be my last radiation treatment 🙂….. Radiation done, back home to go with Tiffany to my appointment at Richmond Cancer Care Clinic with Dr. Ho to discuss Chemotherapy.

Chemotherapy Information:    Because the radiation could only target the lungs and not get to the Esophagus Dr. Ho has set up 6 Chemotherapy sessions.  First chemo treatment will be Monday, March 13th am, each session I will be there about 4 to 4 1/2 hours.  I will be receiving mild to moderate dose so as to not make me too ill, since I had just finished Radiation.   Chemo training session will be on Tuesday, March 7th, 2017 at 1:30pm, Tiffany and Jaime will be attending as well so that we all understand.  Sessions will be every 3 weeks until 6 sessions are complete (June 26th, 2017)…. WOW 3 days before my grandson Luca will be 1 year old on June 29th…

After that we went home to rest  ( purge and pack)….we continued to purge and pack although we haven’t yet secured accommodations we know we have to move within a short time frame….

Now that I’m no longer working and my lifestyle has changed my morning routine in the weekday mornings is a fun,enjoyable routine:

I’m so fortunate Tiffany is on Maternity leave at this time, the fact that I live with Tiffany & Jake & Luca (already have been for 5 years).  When Luca awakes in the morning, Tiffany puts Luca on her bed with a pillow, and goes into kitchen to get her cereal and a cup of coffee.  I will sit in a chair by the bed and have my morning visit with Luca. We play and we talk so that Tiffany can get her morning coffee & cereal.  NOW doesn’t that just make it all worthwhile  –  Pure Joy 

Throughout all this Tiffany’s husband Jake has been a huge support and goes with the flow…. Thank You Jake for  “being you & taking good care of Tiffany and Luca…. oh and me too ( I guess I did come as part of the package when you married Tiffany❤️)”.

Ok,this next part is a bit of a rant about my mix up with Fair Pharmacare….. BUT first of all if you have not yet applied for Fair Pharmacare, please do me a favour and do so right away.  It doesn’t matter if you are young the fact that if you have applied and suddenly get sick and need many medical prescriptions Fair Pharmacare is a great program that will assist with costs and also create a deductible based on income. To be fair part of this mix up is of my own doing ( which I was unaware of, But now totally understand and is why I’m sharing with you).

Ok, since I’ve learned so much, ( and the bursting into tears over the phone with Fair Pharmacare I think made me more alert to capture and understand what they were explaining) If you need any information or help with this, call on me… I feel like I’ve become a expert when it comes to Fair Pharmacare 😀

Bear with me while I rant on paper about this…. but at the same time let’s just say that a Fair Pharmacare is a great program to help people with financial needs for medications 💉.

Fair Pharmacare has a formula to estimate your Family Deductible based on Net Annual Family Income…. ok here is the bit of twist to all this: For 2017 calculation for deductible this is based on income from 2 years past.  So for eligibility this year they are basing this on my 2015 income.  For my situation this is where it just got a little more complex:

2015 was the year that I retired. This particular year just so happened to be my highest year of income ever.  I made the Community Living BC  published  “over $75,000 income list”,  which is a published report “Employees with renumeration exceeding $75,000. So needless to say if they use my 2015 income my deductible that I will need to initially pay could be as high as approximately $2,500.00 or more….once deductible is reached Fair Pharmacare will pay 70% of costs up to a determined amount, then will cover 100% costs.

Ok, onto my next mix-up: FairPharmacare retrieves your income base through a Revenue Canada where they will get a copy of your “Notice of Assessment for 2015”.  The problem in my situation is there is NO record of me filing 2015 Income Tax…. Say what!!! 😫😤… I have my paperwork indicating otherwise. I even owed them $5.87 and paid via electronic payment through my bank. Apparently when I filed my income taxes there must have a glitch and therefore on official records I did not file my taxes for 2015. SHIT really, ok how the Heck do we fix this. During all this, every person I spoke to either at Fair Pharmacare, Revenue Canada, Medical professionals have been saying ” it’s ok, it’s all going to work out”… well I sure hope so 🙏🏻.

Still my response was “Yikes, I’m so screwed if they use that income”  … and that’s when some tears flowed whist talking to them on the phone… this is when they explained about requesting reviews …. ok, my mind A little more at ease……we are getting there:  Once Fair Pharmacare determines your deductible you can call and request a review and request they use either 2016 income or current year 2017 (based on projections I believe)…So first I Need to file my 2015 taxes. This is now done and I’m awaiting to confirm either Revenue Canada that they received it, and find out how much I owe ( I’m assuming more than I first thought $5.87 as I assume I will also have to pay the interests). I am currently doing my 2016 taxes ( not that 2016 is going to help my situation as it was higher because I received pension plus I worked approximately 3 days per week.. But now that I understand it completely I need to follow the process through…. Thank goodness that I still have “My ducks in a row” and mentally can deal with all this… 👍

Two reasons I did go into a “Panic Mode” situation is :

  1.  The daily blood thinner injections that I must do as a result of having 3 blood clots is a very expensive shot and my cost currently per month is $875.  When I was in hospital Doctor Ambler from the VGH Thrombosis Clinic had given me 4 samples (4 shots) and said if run into any issues to reach out to her…. Tiffany  called them and briefly explained my current situation and they put aside another 3 days samples. By mid week I needed to fill the prescrtiom but because of complications the Pharmacist decided to just do 10 days for me and that would give me time to sort out. Phew, thank you. My cost for 10 days approx $400. When she retrieved my information on prescriptions filled this year  so far it also looks like I have already reached my extended health deductible of $250/year, my cost now approximately $177 per 10 days.
  2. Second  reason is that I received a letter from Health Insurance BC advising me “Final Notice: Fair Pharmacare Coverage” advsingmy current coverage would expire March 2nd, 2017 and if they cannot verify income my deductible will be set at $10,0000 😳😳….. 

Ok wow that was long winded and lengthy but I needed that 😀… On this day (Friday, February 24th in the Facebook world I actually posted a Feel Good Friday and talked about all my hearts I’ve been receiving from CLBC staff ( my last publish I put on my blog)….oh and another feel good moment – Confirmed today that we got the home  in Tsawwassen and would be moving this month.  We had to basically pay both homes for March rent but the positive:   Absolutely worth it at the end as it is needed to meet my medical needs and probably for ease and peace of mind….. Tiffany, Jake, and Luca really are my heroes and those kids must be exhausted.  The sooner we move the better as they also need some rest… 😍😍😍

Again I thank you all from the bottom of my heart for following along with me and walking down my path with me.  I appreciate the support, prayers, well wishes, positive healing thoughts…. love you all 💖 😍 💋😘

Below are random pictures taken along this journey and because there are so many it was easier for me to just post them here.  Facebook world has the pics and explains what each one is…l did not do that here as quite honestly seems like too much work for me 😘